Sunday, December 9, 2012

Well, it's been a while....

since we have posted ANYTHING on this site.  But in this instance, that has been a good thing.  We have just been living our lives, surviving and thriving every day.  Jay continues to build his business, I continue to rep CAbi, sub at the kids school and I have started a closet organizing service where I help people clean out, organize and consign or donate items they no longer need.  I then take the remaining items and mix and match them into new outfits, take pictures and bundle it all for the client to refer to in the future.  It is really fun and has been keeping me quite busy.  It's surprising how I really look forward to these appointments, I guess I really do love clothes!  The kids are doing great.  Katie is a spunky four year old and James is hitting his stride at 7.  Having a second grader is a little surreal since I spent 6 years teaching second grade before he was born.  It's a little odd to be the one sitting at the little desk for open house when I used to be the one up there!  I've tried to cut back on my volunteering and spend more time focusing on my family and rebuilding our lives, but I have not removed myself completely from volunteerism.  It's good for the soul to give back. 
We are enjoying the Christmas holiday season.  Feeling fortunate to have such wonderful family and friends, each other, and all the blessings we have in our lives. I say a prayer of thanks at least once a day for my life. 

Will be updating this blog again soon..... I promise!!!! 

Thursday, June 14, 2012

Katie Week...

Since James is up at Camp, it has just been Kari, Katie and me at home.  It has been really fun to just be with her.  Not that she plays second fiddle to her bigger brother but this is really the first time that she has been the center of our attention for such a long period of time. 

We've been taking walks, going to the splash park and hanging out together. 

She and I were hanging out a few nights ago.  She will spontaneously burst into song.  I caught these on video.  Enjoy!

James at Camp

Hello All,

We've been pretty busy over here so we're slacking again at our blogging duties. James is at camp this week. He is up in Wisconsin for the whole week, swimming, shooting bows & arrows, doing crafts and singing around the campfire. It has been radio silence from him up there, which is a good thing. The camp does have a Twitter feed so we're getting periodic updates from the whole group. You can follow the feed at @campkesemnu. We did get this tweet with this picture of him betting a bearded dragon.

 

We do miss him very much and will be excited to see him when he comes home tomorrow. 

Saturday, May 26, 2012

ALL CLEAR!

Can't find anything on the scans!  Thank God and you all for your prayers!

Wednesday, May 23, 2012

Scan-xiety

I have a full day at the hospital today, repeating scans and tests.  While they *don't expect to find anything* it is still nervewracking.  A prayer or well wish in my direction would be well appreciated.  Pray they can't find anything wrong with me! 

Wednesday, May 16, 2012

A Special Wish

Today is my grandmother's birthday.   She past away a little over a year ago.  I miss her terribly.  On my days when I am my saddest, I use her to inspire me and bring me up.  I was so sad when I was diagnosed not to be able to talk to her about it, because I knew that she would have just the right words to say.  But I realize now, that she taught me everything I need to know to get through this already.  She lived life to the fullest with such a zest that she was an inspiration to us all.  And thats what I try to do every day....
I hope she knew just how special she was to me, and I wish that she could know how much comfort she brings me.



                                                        Miss and love you lots grandma!

Saturday, May 12, 2012

Angels and Bolters: A Field Guide to the Wildlife of Cancer

I'm reposting this from someone else's blog... It is so true!  Not that I expereinced all these things exactly this way, but I have expereinced these categories for sure....


Angels and Bolters: a Field Guide to the Wildlife of Cancer


By Karen Ritchie M.D.



When you are diagnosed with cancer, strange things happen to other people. Cancer will probably change you, but it also changes people around you, people you thought you knew.



People behave in unexpected ways. Some you thought were friends disappear. Others hang around. And of those who keep coming around, you will be glad to see some, and less glad to see others.



You will find out who your friends are, as the saying goes. As if that's a good thing. As if anyone ever really wants to find out who can be counted on and who can't. Someone you rarely saw and didn't feel particularly close to may turn out to be the person who is most supportive, who most understands what you are going through.



Although each person's cancer experience is unique, there are some commonalities. The following is a guide to the creatures you may encounter.



Preachers

Preachers are anxious to give you advice and information. They are convinced that they know what is best for you, and they go out of their way to share their answers. They bring you books and tapes, herbs and pills, or they know where you can send money - usually a lot of money - to obtain a product that is guaranteed to cure you. This guarantee, on closer examination, turns out to be more like a strong opinion.



So they will assure you that vegetarians don't get cancer, or meditators don't get cancer, or those who think happy thoughts. None of which is true. They bring you tofu and sprouts when you really want a pizza, and then you feel guilty for eating pizza at all. They insist that you think positive, at a time when you are bald and nauseated and have a temperature of 104 and a major body part is missing.



Preachers are usually well-meaning and sincerely concerned for your welfare, so they are hard to ignore. They are convinced that the one thing they promote is the thing that will cure your cancer, if you only do it correctly. This last part is the kicker - if it doesn't work, you must not be doing it right.



Clueless

The clueless make inane comments. These comments usually fall into one of three categories:



Cancer is not really a problem. (e.g., Losing your hair/body part/health is not really a problem.)

Cancer is really a blessing. (You'll find out who your friends are. Cancer is a gift from God because you are so strong.)

You caused your cancer.(Remember that time you had a negative thought? You are not praying hard enough.)

There are an infinite variety of idiotic remarks. When you have cancer you are liable to hear one or two that are amazingly thoughtless.



If preachers are honestly concerned for your welfare, the clueless are primarily concerned about themselves. They want you to be cheerful because it makes them more comfortable (this includes some health care personnel). Those who deny their own sadness and grief do not want to hear about yours.



The clueless want to believe that the world makes sense, that it is fair and just, that people get what they deserve. They are willing to ignore any evidence to the contrary. They don't really understand your situation; they cannot see your illness from your perspective. They are not interested enough to understand, or they are too fearful of their own well being.



But their ignorance is not your problem. Education of the clueless is extremely time-consuming and frequently doomed. It should be undertaken only in desperate circumstances, or out of sheer boredom. These people are exhausting. You may have to decide whether their company is worth the emotional cost, as you are likely to end up taking care of them.



Bolters

Bolters disappear when you are diagnosed with cancer. The bolter is someone who was always around before you had cancer, but now does not call and does not show up. Bolters may or may not send a card before they leave.



When questioned, bolters make excuses: they knew you were tired, or they knew you would ask if you needed anything, thus blaming their absence on you. Like the clueless, their distance reflects their own discomfort. They stay away because they are afraid of their own sadness or their own mortality.



A related creature is the virtual bolter. Virtual bolters may be physically present but act as if you were no longer there. They ignore you, as if you were invisible. You find yourself not invited to events, as if you didn't exist. You are suddenly excluded from a weekly meeting you have attended for years.



Like the clueless, bolters are generally resistant to logic and are thought to be incurable. When they are caught and questioned they blame others, and it may be best to simply let them go.



Angels

Angels know what to do, and they know what you need. They drop by with a bag of groceries or they offer to walk the dog. They will listen when you need to talk, or they can just sit next to you and be there without having to do anything or say anything. They know that just being there is doing something. Angels tread lightly because they have no agenda of their own.



They treat you like the person you always were. They know that despite the cancer you are still you. Sometimes angels just know what you need, and sometimes they need to ask. An angel knows how to listen to the answer, how to listen to what you say and to what you're not saying. You can cry with angels and you can laugh with them, sometimes both at the same time. Some are born angels. Others have to learn, which takes time and may be awkward at first.



Fellow Travelers

For fellow travelers, your cancer journey is their journey. Family members become fellow travelers out of necessity. Others stick with you by choice.



When you have cancer, they have it too. And in some ways their journey is harder, a time of frustration and powerlessness. While you can fight the cancer, they can only observe.



Fellow travelers want to be supportive, although at first they may not know how. They can become angels but it will take time. Most of us are not good listeners, and it takes a while to learn. You can help by being patient and by asking for what you need.



The clueless are right about one thing - there are good things about having cancer. The best is the opportunity for a closer relationship with those who care about you. And, of course, you learn who your friends are.



From Amazon:



Karen Ritchie, M.D. is a psychiatrist and bioethicist, former Chief of Psychiatry at the University of Texas M.D. Anderson Cancer Center in Houston, Texas. She graduated from Graceland College and from Ohio State University School of Medicine and received a Masters' degree in philosophy/bioethics from Georgetown University.

Thursday, April 19, 2012

Two Year Cancerversary is TODAY!

Two years ago today, it was confirmed what my heart already knew the moment I felt that lump: I had breast cancer.  I tried keeping a positive additiude, and made it through the mammograms, biopsies, and doctor appointments, but I could just tell by the looks on everyone's faces, and the feeling in my gut that it wan't good.  Still, I was not prepared for that Stage 3 diagnosis after surgery.  I am not going to relive that day, week, or process, but I will take another opportunity to thank those that were there for me in the first few moments of this journey: my very good friend and neighbor Alex, my husband, my parents, and my children.  I only have the words "Thank you" for them, as what they did, and continue to do for me, they do out of love, and they don't need anything greater than that in recognition.  (although if I could, I would give them the world).

Their love and support, spread and grew to family, friends, community members, acquantances and strangers.  The love and support I received in my battle can only be described as amazing and awe-inspiring.  I am truly grateful and humbled by the love and generosity of my fellow human beings. 

It is a year and 8 days since my beloved Grandma Kutlzer passed away.  I really miss her today.  I know she would be the very best person to talk to today, as she was a young survivor who lived a very long, healthy and poductive life after her first diagnosis in 1957 at the age of 27.  Her second diagnosis came at age 72 and she also survived that.  I think she could help me sort out this roller coaster of emotions that I feel, especially today.    I am so happy to be here, to be healthy with NO EVIDENCE OF DISEASE (or NED as they call it).  But still, my heart aches.  It aches for what I've given up, for what my husband has lost, for what my children have lost, for the pain and fear I have put my family and friends through.  The aches and pains of every day life, menopause at 33 (hot flashes and 3 and 6 year olds do not go well together) the endless doctor appointments, the fear of reoccurence, the daily handful of pills I take.  Still, I will not give up the fight, or let it ruin my life, it is what it is and I just have to live it, love it and grow from it.  I am one of the lucky ones, as I know many who have lost thier battle with this terrible disease. 

It is often commented to me, espeically on days like today when a certain date plays a significant role in my cancer journey, that I am an ispiration to people and I have taught them so much.  Well, this has taught me so much, and if I could share anything outside of know your family history and be proactive in your health care, rather than follow what doctors or a panel of people that have never met you recommend... it would be some of the lessons written below.

So, in closing, I say THANK YOU to all of you reading this, as well as those important people that aren't reading this, for every thought, prayer, and action shown to me in this never ending journey.  It has not gone unnoticed by me.  I pray every day to be her for another, a cure for this awful disease, and strength to keep fighting.



IF I HAD MY LIFE TO LIVE OVER - by Erma Bombeck
(written after she found out she was dying from cancer).

I would have gone to bed when I was sick instead of pretending the earth would go into a holding pattern if I weren't there for the day.

I would have burned the pink candle sculpted like a rose before it melted in storage.

I would have talked less and listened more.

I would have invited friends over to dinner even if the carpet was stained, or the sofa faded.

I would have eaten the popcorn in the 'good' living room and worried much less about the dirt when someone wanted to light a fire in the fireplace.

I would have taken the time to listen to my grandfather ramble about his youth.

I would have shared more of the responsibility carried by my husband.

I would never have insisted the car windows be rolled up on a summer day because my hair had just been teased and sprayed.

I would have sat on the lawn with my grass stains.

I would have cried and laughed less while watching television and more while watching life.

I would never have bought anything just because it was practical, wouldn't show soil, or was guaranteed to last a lifetime.

Instead of wishing away nine months of pregnancy, I'd have cherished every moment and realized that the wonderment growing inside me was the only chance in life to assist God in a miracle..

When my kids kissed me impetuously, I would never have said, 'Later... Now go get washed up for dinner.' There would have been more 'I love you's, more 'I'm sorry's.'

But mostly, given another shot at life, I would seize every minute; look at it and really see it; live it and never give it back. STOP SWEATING THE SMALL STUFF!

Don't worry about who doesn't like you, who has more, or who's doing what
Instead, let's cherish the relationships we have with those who do love us..

Tuesday, April 17, 2012

Spring Break

Hi everyone!
It's been a while since I posted, but we just got back from a great Spring Break long weekend in the Wisconsin Dells with our good friends the Berry's.  It was so much fun.  A lot more fun than I thought it was going to be actually (the water park, not the company).  I highly recommend the Great Wolf Lodge.  The kids had a great time and there was lots of things to do there. 
Here's a video Jay put together from videos he took with his underwater camera.

http://youtu.be/DyxjfWTHCd8





Here's a video of my dancing queen getting down at the Saturday Night Dance Party....


http://www.youtube.com/watch?v=FxlA7dQ5h1g&list=UUDyv6Hj6Lt9wR7Yo2Bxxtug&index=1&feature=plcp

And of course, it's not a road trip unless you eat at the Cracker Barrel!


And look!  My hair is long enough to pull back into a "duck butt!"

Thursday, February 23, 2012

Life Is....

My mom sent me this and I thought it was worth posting here as well....

“Life is an opportunity, benefit from it.
Life is beauty, admire it.
Life is a dream, realize it.
Life is a challenge, meet it.
Life is a duty, complete it.
Life is a game, play it.
Life is a promise, fulfill it.
Life is sorrow, overcome it.
Life is a song, sing it.
Life is a struggle, accept it.
Life is a tragedy, confront it.
Life is an adventure, dare it.
Life is luck, make it.
Life is too precious, do not destroy it.
Life is life, fight for it.” Mother Theresa

Taking Tattling to a Whole New Level...

As we have mentioned before, we gave Kari's old iPhone to James when she upgraded to her new one.  It doesn't have a SIM card so it can't be used to make calls but it still works as a iPod.  James listens to music on it and plays games on it. 

I set him up with an email address (james@isispower.com) and connected his phone to our home Wi-Fi.  I can send him emails and pictures when I am traveling. 

A few nights ago, we went through our regular routine to get the kids in bed.  Shower for James, bath for Katie.  A few books for Katie, then she goes into her bed.  James and I go downstairs to practice his spelling words while Katie falls asleep. 

This whole routine works very well when Katie goes to sleep.  James goes straight to bed then.  But if she is up, they usually talk, play and goof around. 

I brought James up at 8:30 to go to bed and Katie is wide awake.  I put her back in her bed, put James in his bed and told them both to go to sleep.  I went downstairs to my office to do some work.  While I was down there, I heard some noises upstairs but I assumed that was Kari.  At about 10:00, I get an email from James with the following picture attached. 



When I went upstairs, James was in his bed, genuinely trying to go to sleep.  Katie was wide awake.  He sent me the picture of Katie standing on the edge of his bed trying to get something off of the bookshelf hoping that I would come up an put her back in her bed. 

That is a whole new level of tattling. 

Sunday, February 19, 2012

Cousins and the Conservatory...

Hello All,

We've been slacking in our postings.  The good news is that we are very busy. 

Cousins Caleb and Eli were in town for the weekend.  Kari and I took James, Katie, Caleb and Eli to the Garfield Park conservatory on Saturday to run around, play and look at the flowers.  Here are the highlights. 

Enjoy!






Thursday, January 26, 2012

An Email from James

James sent me an email yesterday.  Indulge me, it is so cute and special to me...

I loveyYyyyyyyyyyyooooouu Mommy




Yes, James has his own iphone, no I didn't give it to him, yes it is excessive and inappropriate.  Talk to his father about it, shockingly, he was the one that gave it to him.  In all fairness, it was my old iphone and he cannot make calls with it.  Jay thought he would enjoy playing games, taking pictures and using the different apps on it.  Since we have wireless in our house, Jay set it up so that if he is in the house he can read, receive and send emails.  It is a great way for Jay to connect with him when he is traveling and working late.  The best part for me is he has stopped playing with my phone!  The thing that cracks me up about the whole situation is Jay will put him to bed, put the phone away and tell him no more phone, it's time for bed.  Then James will get it off the shelf, start playing with it, and we will find out and come and take it away.  He is always so shocked that we know he is playing with the phone.  How do we know?  He sends us emails!  HAHAHAHAAHA!  First rule of not getting caught, don't do things that advertise the fact you are playing with it when you aren't supposed to.  It's moments like this that remind me that he is only 6.....
 
If you want James' email to send him a message, email me and I will pass it on to you. 

Sunday, January 1, 2012

Awesome Insights....

Wow, this is awesome.  I found this on Kris Karr (Crazy, Sexy Cancer book author's site)  Although she doesn't have breast cancer, I think her site still is helpful for me.  I couldn't agree with this list more.  Although I have to admit that I still have quite a bit of vanity left in me, so #5 should probably be tweeked a bit..... 
I should probably make sure that people that come in contact with me have a copy of this list.  Hopefully, they read my blog :) !

By Lissa Rankin MD on December 28, 2011


10 Things I Learned from People Who Survive Cancer



When I interviewed women who had survived breast cancer for my art project The Woman Inside, I noticed that they all had one remarkable thing in common.



They had all faced down death and decided to live every day like it might be their last. And then they all beat cancer.



The more interviews I did, the more I noticed that these women were living differently than most of the people I knew who had not been diagnosed with cancer. Here’s what I learned from those survivor women. Learning these lessons changed my life, and I hope they’ll change yours.



1. Be unapologetically YOU. People who survive cancer get feisty. They walk around bald in shopping malls and roll their eyes if people look at them funny. They say what they think. They laugh often. They don’t make excuses. They wear purple muumuus when they want to.



2. Don’t take shit from people. People who survive cancer stop trying to please everybody. They give up caring what everybody else thinks. If you might die in a year anyway (and every single one of us could), who gives a flip if your great aunt Gertrude is going to cut you out of her will unless you kiss her ass?



3. Learn to say no. People with cancer say no when they don’t feel like going to the gala. They avoid gatherings when they’d prefer to be alone. They don’t let themselves get pressured into doing things they really don’t want to do.



4. Get angry. Then get over it. People who survive cancer get in your face. They question you. They feel their anger. They refuse to be doormats. They demand respect. They feel it. Then they forgive. They let go. They surrender. They don’t stay pissed. They release resentment.



5. Don’t obsess about beauty. People who survive cancer no longer worry about whether they have perfect hair, whether their makeup looks spotless, or whether their boobs are perky enough. They’re happy just to have boobs (if they still do). They’re happy to be alive in their skin, even if it’s wrinkled.



6. Do it now. Stop deferring happiness. People who survive cancer realize that you can’t wait until you kick the bucket to do what you’re dying to do. Quit that soul-sucking job now. Leave that deadbeat husband. Prioritize joy. They live like they mean it.



7. Say “I love you” often. People who survive cancer leave no words left unspoken. You never know when your time is up. Don’t risk having someone you love not know it.



8. Take care of your body. People who survive cancer have a whole new appreciation for health. Those who haven’t been there may take it for granted. So stop smoking. Eat healthy. Drink in moderation. Maintain a healthy weight. Avoid putting toxic poisons in your God pod. Get enough sleep.



9. Prioritize freedom. People who survive cancer know that being a workaholic isn’t the answer. Money can’t buy health. Security doesn’t matter if you’re six feet under. Sixteen hours a day of being a stress monster is only going to make you sick. As Tim Ferriss writes in “The 4-Hour Workweek,” “Gold is getting old. The New Rich are those who abandon the deferred-life plan and create luxury lifestyles in the present using the currency of the New Rich: time and mobility.”



10. Take risks. People who survive cancer have faced their fear and told it to go to hell. They know life is for living. Fear is powerless. And joy lies in taking risks. So go skydiving if you want. Bungee jump. Hang glide. Spend your savings. Live like you might die tomorrow.



Are you doing these things? Or are you waiting for cancer to test out how much you want to live?



Don’t wait for cancer, my love. Don’t tempt the universe that way.



Be brave enough to live now.



For more on how to optimize your life, visit owningpink.com.

Quote from an Oak Park Native

The world breaks everyone and afterward many are strong in the broken places.


Ernest Hemingway, A Farewell to Arms, 1929
US author & journalist (1899 - 1961)