update

Hi everyone.  I thpught I'd give you an update since it has been a while.  For a few weeks now I have been taking tomaxafin.  The first week was ok, but the second week was a little rough.  I was cold, then hot, achy all over and very tired.  I still kind of feel like my body is hosting an internal war, which I guess it kind of is.  This past week I had an ultrasound and another biospsy and mammagram as part of the research study.  I also took my first dose of the research medication tonight.  So far, so good.  I take it tonight, Monday and Tuesday, then have Wed-Sat off, then take it Sun, Mon and Tues and that takes me to Wed June 2nd, my surgery date.  I am all done with tests now until my surgery, with the exception of presurgical testing that I need to complete on June 1st.  This is standard practice for anyone having major surgery, or do I understand.  My surgery will be about 6 hours long, or so I have been told.  I have not really been thinking about that yet, trying to just focus on one day, one moment at a time.  I am sure as it gets closer, I will get more and more nervous.  I just hope that I can stay healthy between now and then, so the surgery can take place as scheduled. 

Now, to recap the weekend: On Saturday my friend Marlene hosted what will probably be my last CAbi show this season.  The season ends in June, but I am going to continue to rep CAbi and look forward to the fall season starting in August.   It was such a nice morning, thank you Marlene!  I had a great time helping everyone find cute clothes.  Thank you also to my mom who came and helped me!  It was nice to see so many friends and hear so many caring words and hear that so many people are praying for me.  It is so touching.   In the late afternoon, Jay, James, Katie and I walked to the park and the kids played.  I was pretty tired by this point and pretty much just sat there and watched them play.  I was happy to watch them, but sad that I was so tired that I just couldn't push myself to play with them, given I still had a long walk home.  And apparently I was very tired as I slept 10 hours last night!  Today we had lunch at Uncle Julio's with our good friend Maria.  It was fun to sit outside, enjoy talking to a good friend and I love that place!  Then we went to my brother's and the kids played inside, and then we walked to a local park where the kids played more.  James brought his bike and enjoyed riding it "on the trails" at the park.  Then we went to the Tastee Freeze and got ice cream!  yum!  Jay took some great pictures which I will ask him to post in the next few days.  Tomorrow he is off to Wisconsin to attend a photo shoot at a car resto shop on ISIS that will be in Car Craft magazine in a few months, so I hope I continue to feel ok, since I am on my own Monday and Tuesday night....