Hi! I used to love Fridays! It meant Jay would be home for the weekend soon, James would have a playdate with his friend Nick as their school schedules didn't conflict, and I could have a playdate with him mom, my friend Alex. And when it was nice weather, Alex and I would sit outside in chairs in the late afternoon and let the kids play in the courtyard as we counted the minutes til 5pm... Other neighbors would join us and quite a few times Jay would come home to quite the impromptu dinner party, complete with wine (it was after 5 after all) in the courtyard. It was really fun!
Now, it seems my Fridays are spent at Loyola. Today I have another test and another doctor appointment. Next Friday I have another test and another doctor appointment. See a pattern?!?! I have been on tomaxafin for a week now. So far, so good. Knock on wood. Next week I will start the study drug. I hope I feel well on that drug too.
I hope I continue to feel well as next Sat my friend is hosting a CAbi party for all her friends, and it will probably be my last one before my surgery. It is kind of working out nicely as the season ends in June and then fall doesn't start until August. At first after being diagnosed, I thought maybe I'd have to give up my CAbi rep status, but after talking to other's who had cancer and the same surgeries I will have, I am happy to say I will continue repping CAbi! I am very excited, as I understand the fall line is incredible, and I think the distraction from treatment will be just what I need!
Enjoy your Friday and keep my family and me in your prayers! Thank you!
3 comments:
As soon as you have a free Friday, we will be outside with a bottle of wine! Maybe this Friday? I love all of the posts. My family is keeping all of you in their prayers. xoxo
Hi Kari,
There is not a day that goes by when Cheryl and I don't think about you and Jay. We have walked every step you are walking, felt every emotion each of you are feeling... We understand.
Every winter has its spring, when you winter has ended it will be your time in the warm sunshine of your family and just loving life.
Cheryl's condition was identical to yours in every way that Jay and I have talked over. Here we are 15 years later and she is healthy and happy. In 15 years your life will be full and rich and everything you have hoped for and dreamed of.
A long time ago when I met Cheryl I realized that she was one of God's angels. When I met you I told Jay that you were also part of that same amazingly special group of beings who are here to take care of all of us. He holds all of you in a very special place in his heart and protects you above all others. He will be there standing next to you through all of this...
Never fear...
Chris
Kari, It's so good to hear that you are feeling well while taking the tomaxafin. I wish I could press a fast forward button to get you past the doctors appointments and to reclaim your Fridays as fun and relaxing. Those days are around the corner and I am praying for some super special Fridays ahead to make up for this current interruption! BIG hugs, Jocelyne
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